I know that I haven't posted since last summer, which is actually a good thing. We found out last fall that the twins are finally suppressed! Finally! They both have the Supprelin LA implants. Our endocrinologist decided that we could test them every 3 months and as long as their numbers stayed consistent, we could keep the implants in. Fast forward today....we were able to keep the implants for 18 months (the normal length of time is 1 year). The doctor had actually toyed with the idea of taking the implants out and seeing how their bodies respond.....maybe even stayed suppressed after removing the implants. We had hope that maybe the twins could be spared yearly procedures of pulling out the old implant and putting new ones in, but at their most recent visit the doctor felt like they were too young and too difficult to suppress to take that chance. So the process has begun.
We were lucky to extend things an extra 6 months but now we need to move forward with new implants because their bodies can start to reject them or they can get an infection. For any of you who don't know, each implant costs about $17,500. Thankfully we have health insurance which will help cover the cost of over $35,000 but we still have our portion, which will be over $5000. This has to be paid up front before the implants can ship. Normally we are more prepared for this but we have had extenuating circumstances this year that are making that very difficult. I have posted more details about all of that on my new blog: Someone Took my Easy Card (someonetookmyeasycard.blogspot.com).
So glad this is working for the boys. You all are in our hearts always. I know the whole situation is very hard and stressful. Love you all, Kathy
ReplyDeleteHello, I just stumbled on your blog and I have twin boys. They are 8 and have been showing signs of pp for a few years but my doctor brushed me off. I am frustrated. We have an appt with a new doctor next week. I am worried a lot because my boys are so nervous about doctor stuff and I don't want this to be horrible for them. I appreciate your informative blog and would love to read more!
ReplyDeleteHi! Curious. I read thru (skimmed through) each of your posts in hopes of finding what symptoms your kiddos displayed. My just-turned-8 year old told me 2 days ago he has hair down there. We noticed body odor maybe a year ago and I noticed probably a month or two ago a little "dirty mustache" as I call it. Where it looks like they have dirt smudged on their lip. But now, pubic hair and I looked today, armpit hair. He's always been a big kid, but people are commenting very regularly about how tall he's gotten recently. We have an appointment with his pediatrician in a couple weeks. I'm worried. Thanks for any insight you can impart.
ReplyDelete